Today is Rare Disease Day and I thought I’d share some things I hate about having a chronic illness. I’ve suffered with chronic pain for sixteen years, and here’s a few things that are shitty about it. The actual illness and comorbidities are crap, painful, stressful etc. Constantly cancelling/rearranging plans Inability to be spontaneous Never…
Month: February 2016
Best Friend Because
I’m dedicating this post to my best friend, my soul mate, the male equivalent of me, my darling John. We’ve been friends since secondary school, it’s been about sixteen years, which makes me feel old, but I’m so glad we were sat next to each other all those years ago in English class. Nice one,…
A Day In The Life: Ehlers-Danlos Syndrome
This week it’s Hypermobility Syndromes Awareness Week #HMSAware and obviously it’s really important to me as I have Ehlers-Danlos Syndrome Type 3. What many people don’t realise is that the HMSA (a bloody amazing charity) take all hypermobility syndromes into account, not just EDS, and it’s vital that the other hypermobility syndromes get enough attention…
Open Letter to Train Passengers
I don’t use public transport that often. I have a car and I don’t mind driving but if I have to do a lot of driving in one day, I’m absolutely screwed, I have a flare-up that can last days, if not weeks and then I’m an irritable bitch. Unfortunately, Ian can’t drive so I…
Personal: To the Sperm Donor
Weren’t we adorable? I share pretty much everything on my blog, it’s my space, I write what I want, and I’m lucky enough to have a readership that appreciate my honesty. But this one is a little different; I won’t be regaling ridiculous things I’ve said due to brain fog, or telling you about how…
Dating Websites/Apps for the Disabled
Last week I entered into a Twitter debate regarding dating apps/websites specifically designed for disabled people. I’m not one to hold back with my opinion (as you well know), and since I found a number of issues with the websites/apps, I thought I’d share why I find it all so problematic.1. It highlights that disabled…
Yankee Candle Haul
In Nottingham a few weeks ago, I took full advantage of the Yankee Candle store, as you can tell. I always buy the sample sizes before purchasing a large jar so I can test out how they burn and whether I like the scent; I then head straight over eBay and buy the large jars…
Life Update #2 We have a House
Hey, guess what? WE HAVE A HOUSE!!! First off let me apologise for not posting on Friday, I don’t like missing/changing schedule as I’m a stickler for a routine, but I’ve had a completely justifiable reason. A week ago, Ian and I got the keys to our new house and we’ve been so busy getting…